Monday, January 9, 2012

everything is a pea under miss a's mattress

As I type to you, Miss A is up in her room rather than at school. She woke up crying, then grew increasingly upset as I dragged her through the process of getting ready for school this morning. She had a headache. She thought she might have a fever. (Nope.) Her tummy hurt. She thought she might throw up. She had gym class today. If we let her stay home she would stay in her room and work on math all day long.

Eventually Jason took pity on her and let her stay home, telling her he'd take her to school this afternoon. He went up a few minutes ago and she tearfully begged him to let her stay home all day.

This weekend I had a handful of realizations about Miss A. I can't remember all of them because I'm so tired. But she likes school less all the time, she used to love gym and math and now they're her least favorite parts of the day, she is making herself sick worrying about school, she genuinely can't shake off stuff other people can, like being singled out for talking when she was answering comments or questions from other people. If I look at her insane behavior as a symptom of a disability (and I feel ridiculous using that term when she is able-bodied and able to control herself in public and able to perform at school, etc.) it is a lot easier to be patient and compassionate. But then sometimes I also feel like JUST FREAKING GET DRESSED AND GO TO SCHOOL BECAUSE THAT'S WHAT PEOPLE DO!

Yesterday we went to an open house at a charter school here. They have social and emotional counseling for emotionally sensitive children. Using the word "sensitive" makes me feel like I'm saying Miss A is the most compassionate person ever and woodland creatures flock to her as if she was Snow White. This is not the case. She's sensitive in the sense of "The Princess and the Pea."

The school seemed amazing aside from the counseling aspect, so we're applying for enrollment. Miss A started chattering about switching in the middle of this year. That surprised us, because we thought her attachment to current teachers and school friends would be too strong. Apparently not.

Tomorrow morning we have an appointment with her pediatrician to talk about what the heck we're supposed to do to help her. I'm hoping he can help us figure out what to do, or refer me to one of the exactly two pediatric behavioral health specialists in my insurance network (one of whom graduated from medical school in 1967 so he has to be around 70, right?).

I feel nervous about potentially sending Miss A to this amazing (and tuition-free) charter school, as if she is so incredibly special she needs a special school filled with other special people. She is special, of course, in the way people are special, but I don't know how to say to people, "It's not that she's so smart, it's that we're so desperate." And apparently charter schools are another thing, like "red-shirting" your kindergartener, that are a big hot button for people who are not me. So I worry I am offending Miss A's teachers or putting them in a bad position by asking them to write referrals for her application. And I'm almost over this one but I still have a slight feeling of, "Can't it just be easy?" Can't they all just go to the same school and ride the bus and come home and do homework and do activities that are not speech therapy?

But yesterday the pastor at our church gave a well-timed talk on how important it is to reflect on what is good before moving forward, so here's what's good:

  • The pain and discomfort I dealt with during childhood now has a purpose that I can see, and it helps me have compassion for Miss A.
  • God works miracles, and I can have hope for Miss A despite the failures of the schools, her doctors, and her parents.
  • My boys don't seem to care or notice that people can't understand them well.
  • The boys seem to get that something is amiss with Miss A and they want to help her.
  • The boys have a great teacher this year and I don't have to worry about them.
  • We have options about where we can send Miss A to school.
  • We have the option to home school her.
  • We make enough money that we can even consider stuff like sending the kids to therapy.
  • I am able to work from home so we don't have to send them to school no matter what.
  • Jason and I like each other and can laugh about this stuff together. 
  • Had we continued to have babies (like I wanted), I would not be able to attend to Miss A like I can now.
  • A handful of you guys have written me about school stuff and I like getting that insight from other people.
  • Life is full of surprises. Which I sort of like and sort of don't, but I think it's good for me.

8 comments:

  1. I missed a few months of posts in some craziness, so I'm wondering what happened with the online school option?

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  2. You are great parents and trying your best. Something has to give for everyone's sanity. Hopefully the charter school is just the thing.

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  3. Thanks, Amy.

    Wiley, the online school we tried was okay but definitely not challenging for her. They moved REALLY slowly, and much of the material was stuff she'd covered in her regular classroom the year before. A friend of mine has her daughter in another online school that seems a lot better, and I am open to that if we don't get into this charter school. But Jason is not enthusiastic about the online option based on how it went last time, and this charter school offers more than what I think I could offer her using the online school (or home schooling on my own).

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  4. How likely is admision to teh charter school? I know some of them are really competitive lotteries... Love that you keep your mind open and keep exploring as many options as possible.

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  5. I stumbled on your blog a little while ago and have been reading avidly ever since -- especially because Miss A reminds me a lot of myself at that age: I was extremely emotionally sensitive, crying every day in school...my parents considered "special" private schools, including a Free School, but ended up keeping me in public school (no charter schools in my town).

    So what I want to tell you is: hang in there, there is hope! It was a long journey and not an easy one, but I just graduated from a prestigious college with honors, am gainfully employed, and consider myself to be a fully-functioning happy human being.

    I still struggle with my oversensitivity -- it's part of me and it will never go away -- but I have learned to manage and control it so that it doesn't get in the way of living my life.

    That charter school sounds amazing, but as long as you're focused on helping Miss A thrive, there are no wrong choices. And don't feel bad about asking teachers to recommend her for the charter school -- no good teacher should be offended by a parent saying "your school is great but my kid needs this more specialized environment".

    -Becky

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  6. Becky -- I was way over-sensitive too, emotionally as well as being extremely bothered by small sounds, the way clothes felt, being too hot or cold, etc. I still am way too sensitive but like you were saying, it doesn't get in the way of my life anymore. I feel so bad for her... but then at the same time I have my own agenda of getting everyone from point A to point B, and our house isn't big enough for her to have her own bedroom/controlled environment adjusted to her specifications, and my other kids can't help making breathing noises, etc. So then I get impatient and frustrated with her... I do feel like there is hope for her, though, and I'd like to believe she is just sensitive and doesn't have a personality disorder. But either way there is hope for her and I have to remember that.

    Wiley, I'm not sure how likely she is to get in, or how many applicants they typically have. If they have more applicants than spaces they hold a lottery. That sort of thing is a relief to me because I have no control over the outcome and any decision is made for me!

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  7. I think that, at home, your job is helping her learn to deal with all the annoyances, rather than eliminating them. As you point out, that would be impossible (and, in my opinion, wouldn't really be helping her, anyway). I do hope that charter school works out, though. It sounds great. That way, she gets some specialized attention; but at home, she still has to deal with real life. Win-win!

    Also, I have had innumerable people tell me that eliminating gluten may help with these over-sensitive, over-anxious types. My daughter is too old to impose that sort of diet regimen on and she refuses to cooperate with it. But you may be able to try it with yours. I know! What fun!

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  8. Have you looked into sensory disorders? Or read the book The Out of Sync Child?
    Sara

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THE DAYS ARE LONG, BUT THE YEARS ARE SHORT.